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Our original Facebook post went viral, reaching 12.6 MILLION people and 246,000 Likes!THANK YOU @bethyd_ 💜 #crohns #crohnsdisease #IBD #crohnsawareness #stoma #ostomy #Ileostomy #colostomy #IBDfighter #crohnswarrior #crohnsandcolitisuk #fighting IBDtogether A post shared by Crohn's and Colitis UK (@crohnsandcolitisuk) on I mean, I’m not suggesting you start stripping and changing your bag in front of your friends and colleagues – let’s face it seeing someone’s intestines is a bit like seeing someone naked. I then read a blog by Jessica Grossman, the founder of Uncover Ostomy, which is a website dedicated to removing the stigma attached to living with Colostomy and Ileostomy bag.during this scan, it was discovered that my crohns had attached itself to my kidney, bladder and Fallopian tube but they had also discovered that my bowel had been severely damaged.not only had my bowel become completely closed off at one bit, but the bowel had also managed to twist itself inside of itself at another bit.However, when it comes to adjusting to your new body and how to cope with it in the real world, in all honestly, unless they have one, they really have no clue. In my head, I think that calling it that meant I could talk about it and nobody would know what I was talking about. Whilst after any operation on the bowel you have to be careful what you eat, over time I have dipped my toe and found there are plenty on that ‘List of Doom’ that I can still enjoy and without any hospital visits or complications – but there are also some I really can’t! Everybody is different, so the NHS and online lists encompass all the possible foods that can affect anybody and everybody, to be safe.
Now, if someone had said to me 3 years ago I would talk to even my closest friends and family about this ‘thing,’ let alone millions of you, I would have laughed them out of the bar (that’s where we would have been, as I would have had to be consuming a lot of alcohol to come up with an idea that was so insane). So here I am, ten years later and I’ve decided the best way to mark the occasion is to write a message to the old me and to all the other women who may just be starting out on that same journey, about the new world I was entering.The smallest amount can cause a night full of horrific stomach cramps or, even worse, a trip to A&E. Whether it is partners, friends, family or colleagues, does your bag affect their life?Are you really any different to them as a person if you do or don’t have it? I have shared hotel rooms with friends for entire weekends and they have been none the wiser that I am pooping into a bag whilst lying next to them. I can sneak my bags and dressings into a bathroom and do a change quicker than most women can get changed into their PJs. Exactly 3 years ago we shared Bethany's inspirational story of living with Crohn's Disease and a stoma, which achieved worldwide media coverage.today i started a health care course and one of the things we will be learning about is colostomy bags and at first i was embarrassed about that.but the more i thought about it, all i can think is why should i be embarrassed that has made my life so much better?